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Care Around Stillbirth and Neonatal Death (CASaND) Clinical Practice Guideline

Section 1 references

Care around loss - parent resources
  1. Flenady, V., et al., Clinical practice guideline for care around stillbirth and neonatal death. Vol. 3.4. 2020, Brisbane: NHMRC Centre of Research Excellence.
  2. National Health and Medical Research Council. Guideline development. n.d.; Available from: https://www.nhmrc.gov.au/research-policy/guideline-development.
  3. Wojcieszek, A.M., et al., Care in subsequent pregnancies following stillbirth: An international survey of parents. BJOG: An International Journal of Obstetrics and Gynaecology, 2018. 125(2): p. 193–201 doi: 10.1111/1471-0528.14424.
  4. Homer, C.S.E., A. Malata, and P. ten Hoope- Bender, Supporting women, families, and care providers after stillbirths. Lancet, 2016. 387(10018): p. 516-517 doi: 10.1016/S0140-6736(15)01278-7.
  5. Gordon, L.G., et al., Healthcare costs of investigations for stillbirth from a population- based study in Australia. Australian Health Review, 2021. 45(6): p. 735-744 doi: 10.1071/AH20291.
  6. Mitterer, S., et al., Measuring financial burden in families of children living with life-limiting conditions: A scoping review of cost indicators and outcome measures. Value in Health, 2021. 24(9): p.1377–1389 doi: 10.1016/j.jval.2021.03.015.
  7. Heazell, A.E.P., et al., Stillbirths: Economic and psychosocial consequences. Lancet, 2016. 387(10018): p. 604–616 doi: 10.1016/S0140-6736(15)00836-3.
  8. United Nations Inter-agency Group for Child Mortality Estimation. A neglected tragedy: The global burden of stillbirths. 2020; Available from: https://data.unicef.org/resources/a-neglected- tragedy-stillbirth-estimates-report/.
  9. Lawn, J.E., et al., Stillbirths: Rates, risk factors, and acceleration towards 2030. Lancet, 2016. 387(10018): p. 587-603 doi: 10.1016/S0140-6736(15)00837-5.
  10. Horton, R. and U. Samarasekera, Stillbirths: Ending an epidemic of grief. Lancet, 2016. 387(10018): p. 515-516 doi: 10.1016/s0140-6736(15)01276-3.
  11. Flenady, V., et al., Stillbirths: Recall to action in high-income countries. Lancet, 2016. 387(10019): p. 691–702 doi: 10.1016/s0140-6736(15)01020-x.
  12. de Bernis, L., et al., Stillbirths: Ending preventable deaths by 2030. Lancet, 2016. 387(10019): p.703-716 doi: 10.1016/s0140-6736(15)00954-x.
  13. United Nations Inter-agency Group for Child Mortality Estimation. Never forgotten. The situation of stillbirth around the globe. 2022; Available from: https://childmortality.org/wp- content/uploads/2023/03/UN-IGME-Stillbirth- Report-2022.pdf.
  14. Mozooni, M., D.B. Preen, and C.E. Pennell, The influence of acculturation on the risk of stillbirth in migrant women residing in Western Australia. PLoS One, 2020. 15(4): p. e0231106-e0231106 doi: 10.1371/journal.pone.0231106.
  15. Bowman, A.J. Stillbirths in high-income countries: Lifestyle, environmental and sociodemographic risk factors. [PhD] 2022. Available from: https://digital.library.adelaide.edu.au/dspace/bit stream/2440/135972/1/Bowman2022_PhD.pdf.
  16. Rumbold, A.R., et al., Stillbirth in Australia 3: Addressing stillbirth inequities in Australia: Steps towards a better future. Women and Birth, 2020. 33(6): p.520–525 doi: 10.1016/j.wombi.2020.08.012.
  17. Shipstone, R.A., et al., Prevalence of risk factors for sudden infant death among Indigenous and non-Indigenous people in Australia. Acta Paediatrica, 2020.109(4) doi: 10.1111/apa.15274.
  18. Australian Institute of Health and Welfare. Australia’s mothers and babies: Stillbirths and neonatal deaths. 2022. 2023; Available from: https://www.aihw.gov.au/reports/mothers-babies/stillbirths-and-neonatal-deaths.
  19. Perinatal and Maternal Mortality Review Committee. Fifteenth annual report of the Perinatal and Maternal Mortality review Committee. Te Pūrongo ā-Tau Tekau mā mā Rima o te Komiti Arotake Mate Pēpi, Mate Whaea Hoki: Reporting Mortality and Morbidity 2020. Te Tuku Pūrongo mō te Mate me te Whakamate 2020. 2022; Available from: https://www.hqsc.govt.nz/assets/Our- work/Mortality-review- committee/PMMRC/Publications- resources/15thPMMRC-report-final.pdf
  20. Wojcieszek, A.M., et al., Interventions for investigating and identifying the causes of stillbirth. Cochrane Database of Systematic Reviews, 2018. 4(4:CD012504) doi: 10.1002/14651858.CD012504.pub2.
  21. Sexton, J.K., et al., Prospective cohort study: Causes of stillbirth in Australia 2013–2018. Australian & New Zealand Journal of Obstetrics & Gynaecology, 2021. 61(5): p. 667–674 doi: 10.1111/ajo.13334.
  22. Richardus, J.H., et al., Suboptimal care and perinatal mortality in ten European regions: Methodology and evaluation of an international audit. Journal of Maternal-Fetal & Neonatal Medicine, 2003. 14(4): p. 267-276 doi: 10.1080/jmf.14.4.267.276.
  23. Consultative Council on Obstetric and Paediatric Mortality and Morbidity. Victoria’s mothers, babies and children 2020. 2022; Available from: https://www.safercare.vic.gov.au/publications/vi ctorias-mothers-babies-and-children-2020- report-and-presentations
  24. Flenady, V. and D. Ellwood, Making real progress with stillbirth prevention. Australian and New Zealand Journal of Obstetrics and Gynaecology, 2020. 60(4): p. 495–497 doi: 10.1111/ajo.13208.
  25. Flenady, V., et al., Making every birth count: Outcomes of a perinatal mortality audit program. Australian & New Zealand Journal of Obstetrics & Gynaecology, 2021. 61(4): p. 540–547 doi: 10.1111/ajo.13325.
  26. Medeiros, P.d.B., et al., Evaluation of an online education program for healthcare professionals on best practice management of perinatal deaths: IMPROVE eLearning. Australian and New Zealand Journal of Obstetrics and Gynaecology, 2024. 64(1): p.63–71 doi: 10.1111/ajo.13743.
  27. Australian Government Department of Health. National Stillbirth Action and Implementation Plan. 2020; Available from: https://www.health.gov.au/sites/default/files/do cuments/2021/03/national-stillbirth-action-and- implementation-plan.pdf.
  28. de Graaff, E.C., et al., Ending preventable stillbirths and improving bereavement care: a scorecard for high- and upper-middle income countries. BMC Pregnancy and Childbirth, 2023. 23(1): p. 480 doi: 10.1186/s12884-023-05765-5.
  29. Boyle, F.M., et al., Clinical practice guidelines for perinatal bereavement care—An overview. Women and Birth, 2020. 33(2): p. 107–110 doi: 10.1016/j.wombi.2019.01.008.
  30. Australian Institute of Health and Welfare. Australia’s mothers and babies: Definitions. 2023; Available from: https://www.aihw.gov.au/reports/mothers- babies/australias-mothers- babies/contents/technical-notes/definitions
  31. COAG Health Council Australian Government Department of Health. Woman-centred care: Strategic directions for Australian maternity services. 2019 August; Available from: https://www.health.gov.au/resources/publicatio ns/woman-centred-care-strategic-directions-for- australian-maternity-services?language=en.
  32. Sands UK. National Bereavement Care Pathway for Pregnancy and Baby Loss. Stillbirth: Full guidance document. 2022; Available from: https://www.nbcpathway.org.uk/pathways/stillbirth-bereavement-care-pathway/
  33. Smith, L.K., et al., Parents’ experiences of care following the loss of a baby at the margins between miscarriage, stillbirth and neonatal death: A UK qualitative study. BJOG: An International Journal of Obstetrics and Gynaecology, 2020. 127(7): p. 868–874 doi: 10.1111/1471-0528.16113.
  34. Koopmans, L., et al., Support for mothers, fathers and families after perinatal death. Cochrane Database of Systematic Reviews, 2013(6) doi: 10.1002/14651858.CD000452.pub3.
  35. Horey, D., et al., Interventions for supporting parents’ decisions about autopsy after stillbirth. Cochrane Database of Systematic Reviews, 2013(2) doi: 10.1002/14651858.CD009932.pub2.
  36. Wojcieszek, A.M., et al., Care prior to and during subsequent pregnancies following stillbirth for improving outcomes. Cochrane Database of Systematic Reviews,  2018.  2018(12):  p. CD012203 doi: 10.1002/14651858.CD012203.pub2.
  37. Flenady, V., Care practices after stillbirth and neonatal death: A survey of Australian maternity services. ISA Conference 2021. 2021.
  38. Downe, S., et al., Qualitative Evidence Synthesis (QES) for Guidelines: Paper 1 – Using qualitative evidence synthesis to inform guideline scope and develop qualitative findings statements. Health Research Policy and Systems, 2019. 17(1): p. 76 doi: 10.1186/s12961-019-0467-5.
  39. Australian Indigenous HealthInfoNet. The Australian Indigenous HealthInfoNet guidelines for Aboriginal and Torres Strait Islander terminology. 2022.
  40. American Psychological Association. Disenfranchised grief. APA Dictionary of Psychology 2023; Available from: https://dictionary.apa.org/disenfranchised-grief.
  41. The World Bank. World Bank country and lending groups. n.d.; Available from: https://datahelpdesk.worldbank.org/knowledgebase/articles/906519-world-bank-country-and-lending-groups#%3A%7E%3Atext%3DFor%20the%20current%202024%20fiscal%2Cthose%20with%20a%20GNI%20per
  42. Moorfield, J.C., Te Whanake 1: Te Kākano. 2 ed. 2001, New Zealand: Longman/Pearson.
  43. World Health Organization. Mental health. 2022; Available from: https://www.who.int/news- room/fact-sheets/detail/mental-health- strengthening-our-response.
  44. Laoire, Á.N., et al., Perinatal palliative care in Oxford Textbook of Palliative Care for Children, R. Hain, et al., Editors. 2021, Oxford University Press
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