Looking for our parents page? See stillbirthcre.org.au/parents
Home > CASaND Guideline > Introduction > Section 1 references
Care Around Stillbirth and Neonatal Death (CASaND) Clinical Practice Guideline

Section 1 references

Care around loss - parent resources
  1. Flenady, V., et al., Clinical practice guideline for care around stillbirth and neonatal death. Vol. 3.4. 2020, Brisbane: NHMRC Centre of Research Excellence.
  2. National Health and Medical Research Council. Guideline development. n.d.; Available from: https://www.nhmrc.gov.au/research-policy/guideline-development.
  3. Wojcieszek, A.M., et al., Care in subsequent pregnancies following stillbirth: An international survey of parents. BJOG: An International Journal of Obstetrics and Gynaecology, 2018. 125(2): p. 193–201 doi: 10.1111/1471-0528.14424.
  4. Homer, C.S.E., A. Malata, and P. ten Hoope- Bender, Supporting women, families, and care providers after stillbirths. Lancet, 2016. 387(10018): p. 516-517 doi: 10.1016/S0140-6736(15)01278-7.
  5. Gordon, L.G., et al., Healthcare costs of investigations for stillbirth from a population- based study in Australia. Australian Health Review, 2021. 45(6): p. 735-744 doi: 10.1071/AH20291.
  6. Mitterer, S., et al., Measuring financial burden in families of children living with life-limiting conditions: A scoping review of cost indicators and outcome measures. Value in Health, 2021. 24(9): p.1377–1389 doi: 10.1016/j.jval.2021.03.015.
  7. Heazell, A.E.P., et al., Stillbirths: Economic and psychosocial consequences. Lancet, 2016. 387(10018): p. 604–616 doi: 10.1016/S0140-6736(15)00836-3.
  8. United Nations Inter-agency Group for Child Mortality Estimation. A neglected tragedy: The global burden of stillbirths. 2020; Available from: https://data.unicef.org/resources/a-neglected- tragedy-stillbirth-estimates-report/.
  9. Lawn, J.E., et al., Stillbirths: Rates, risk factors, and acceleration towards 2030. Lancet, 2016. 387(10018): p. 587-603 doi: 10.1016/S0140-6736(15)00837-5.
  10. Horton, R. and U. Samarasekera, Stillbirths: Ending an epidemic of grief. Lancet, 2016. 387(10018): p. 515-516 doi: 10.1016/s0140-6736(15)01276-3.
  11. Flenady, V., et al., Stillbirths: Recall to action in high-income countries. Lancet, 2016. 387(10019): p. 691–702 doi: 10.1016/s0140-6736(15)01020-x.
  12. de Bernis, L., et al., Stillbirths: Ending preventable deaths by 2030. Lancet, 2016. 387(10019): p.703-716 doi: 10.1016/s0140-6736(15)00954-x.
  13. United Nations Inter-agency Group for Child Mortality Estimation. Never forgotten. The situation of stillbirth around the globe. 2022; Available from: https://childmortality.org/wp- content/uploads/2023/03/UN-IGME-Stillbirth- Report-2022.pdf.
  14. Mozooni, M., D.B. Preen, and C.E. Pennell, The influence of acculturation on the risk of stillbirth in migrant women residing in Western Australia. PLoS One, 2020. 15(4): p. e0231106-e0231106 doi: 10.1371/journal.pone.0231106.
  15. Bowman, A.J. Stillbirths in high-income countries: Lifestyle, environmental and sociodemographic risk factors. [PhD] 2022. Available from: https://digital.library.adelaide.edu.au/dspace/bit stream/2440/135972/1/Bowman2022_PhD.pdf.
  16. Rumbold, A.R., et al., Stillbirth in Australia 3: Addressing stillbirth inequities in Australia: Steps towards a better future. Women and Birth, 2020. 33(6): p.520–525 doi: 10.1016/j.wombi.2020.08.012.
  17. Shipstone, R.A., et al., Prevalence of risk factors for sudden infant death among Indigenous and non-Indigenous people in Australia. Acta Paediatrica, 2020.109(4) doi: 10.1111/apa.15274.
  18. Australian Institute of Health and Welfare. Australia’s mothers and babies: Stillbirths and neonatal deaths. 2022. 2023; Available from: https://www.aihw.gov.au/reports/mothers-babies/stillbirths-and-neonatal-deaths.
  19. Perinatal and Maternal Mortality Review Committee. Fifteenth annual report of the Perinatal and Maternal Mortality review Committee. Te Pūrongo ā-Tau Tekau mā mā Rima o te Komiti Arotake Mate Pēpi, Mate Whaea Hoki: Reporting Mortality and Morbidity 2020. Te Tuku Pūrongo mō te Mate me te Whakamate 2020. 2022; Available from: https://www.hqsc.govt.nz/assets/Our- work/Mortality-review- committee/PMMRC/Publications- resources/15thPMMRC-report-final.pdf
  20. Wojcieszek, A.M., et al., Interventions for investigating and identifying the causes of stillbirth. Cochrane Database of Systematic Reviews, 2018. 4(4:CD012504) doi: 10.1002/14651858.CD012504.pub2.
  21. Sexton, J.K., et al., Prospective cohort study: Causes of stillbirth in Australia 2013–2018. Australian & New Zealand Journal of Obstetrics & Gynaecology, 2021. 61(5): p. 667–674 doi: 10.1111/ajo.13334.
  22. Richardus, J.H., et al., Suboptimal care and perinatal mortality in ten European regions: Methodology and evaluation of an international audit. Journal of Maternal-Fetal & Neonatal Medicine, 2003. 14(4): p. 267-276 doi: 10.1080/jmf.14.4.267.276.
  23. Consultative Council on Obstetric and Paediatric Mortality and Morbidity. Victoria’s mothers, babies and children 2020. 2022; Available from: https://www.safercare.vic.gov.au/publications/vi ctorias-mothers-babies-and-children-2020- report-and-presentations
  24. Flenady, V. and D. Ellwood, Making real progress with stillbirth prevention. Australian and New Zealand Journal of Obstetrics and Gynaecology, 2020. 60(4): p. 495–497 doi: 10.1111/ajo.13208.
  25. Flenady, V., et al., Making every birth count: Outcomes of a perinatal mortality audit program. Australian & New Zealand Journal of Obstetrics & Gynaecology, 2021. 61(4): p. 540–547 doi: 10.1111/ajo.13325.
  26. Medeiros, P.d.B., et al., Evaluation of an online education program for healthcare professionals on best practice management of perinatal deaths: IMPROVE eLearning. Australian and New Zealand Journal of Obstetrics and Gynaecology, 2024. 64(1): p.63–71 doi: 10.1111/ajo.13743.
  27. Australian Government Department of Health. National Stillbirth Action and Implementation Plan. 2020; Available from: https://www.health.gov.au/sites/default/files/do cuments/2021/03/national-stillbirth-action-and- implementation-plan.pdf.
  28. de Graaff, E.C., et al., Ending preventable stillbirths and improving bereavement care: a scorecard for high- and upper-middle income countries. BMC Pregnancy and Childbirth, 2023. 23(1): p. 480 doi: 10.1186/s12884-023-05765-5.
  29. Boyle, F.M., et al., Clinical practice guidelines for perinatal bereavement care—An overview. Women and Birth, 2020. 33(2): p. 107–110 doi: 10.1016/j.wombi.2019.01.008.
  30. Australian Institute of Health and Welfare. Australia’s mothers and babies: Definitions. 2023; Available from: https://www.aihw.gov.au/reports/mothers- babies/australias-mothers- babies/contents/technical-notes/definitions
  31. COAG Health Council Australian Government Department of Health. Woman-centred care: Strategic directions for Australian maternity services. 2019 August; Available from: https://www.health.gov.au/resources/publicatio ns/woman-centred-care-strategic-directions-for- australian-maternity-services?language=en.
  32. Sands UK. National Bereavement Care Pathway for Pregnancy and Baby Loss. Stillbirth: Full guidance document. 2022; Available from: https://www.nbcpathway.org.uk/pathways/stillbirth-bereavement-care-pathway/
  33. Smith, L.K., et al., Parents’ experiences of care following the loss of a baby at the margins between miscarriage, stillbirth and neonatal death: A UK qualitative study. BJOG: An International Journal of Obstetrics and Gynaecology, 2020. 127(7): p. 868–874 doi: 10.1111/1471-0528.16113.
  34. Koopmans, L., et al., Support for mothers, fathers and families after perinatal death. Cochrane Database of Systematic Reviews, 2013(6) doi: 10.1002/14651858.CD000452.pub3.
  35. Horey, D., et al., Interventions for supporting parents’ decisions about autopsy after stillbirth. Cochrane Database of Systematic Reviews, 2013(2) doi: 10.1002/14651858.CD009932.pub2.
  36. Wojcieszek, A.M., et al., Care prior to and during subsequent pregnancies following stillbirth for improving outcomes. Cochrane Database of Systematic Reviews,  2018.  2018(12):  p. CD012203 doi: 10.1002/14651858.CD012203.pub2.
  37. Flenady, V., Care practices after stillbirth and neonatal death: A survey of Australian maternity services. ISA Conference 2021. 2021.
  38. Downe, S., et al., Qualitative Evidence Synthesis (QES) for Guidelines: Paper 1 – Using qualitative evidence synthesis to inform guideline scope and develop qualitative findings statements. Health Research Policy and Systems, 2019. 17(1): p. 76 doi: 10.1186/s12961-019-0467-5.
  39. Australian Indigenous HealthInfoNet. The Australian Indigenous HealthInfoNet guidelines for Aboriginal and Torres Strait Islander terminology. 2022.
  40. American Psychological Association. Disenfranchised grief. APA Dictionary of Psychology 2023; Available from: https://dictionary.apa.org/disenfranchised-grief.
  41. The World Bank. World Bank country and lending groups. n.d.; Available from: https://datahelpdesk.worldbank.org/knowledgebase/articles/906519-world-bank-country-and-lending-groups#%3A%7E%3Atext%3DFor%20the%20current%202024%20fiscal%2Cthose%20with%20a%20GNI%20per
  42. Moorfield, J.C., Te Whanake 1: Te Kākano. 2 ed. 2001, New Zealand: Longman/Pearson.
  43. World Health Organization. Mental health. 2022; Available from: https://www.who.int/news- room/fact-sheets/detail/mental-health- strengthening-our-response.
  44. Laoire, Á.N., et al., Perinatal palliative care in Oxford Textbook of Palliative Care for Children, R. Hain, et al., Editors. 2021, Oxford University Press
Previous
Glossary and abbreviations
Next
Section 1 appendices
Table of Contents
Stillbirth Logo
Western Pacific Regional Office of the International Stillbirth Alliance
Coordinating Centre, Stillbirth and Neonatal Death Alliance, Perinatal Society of Australia and New Zealand

Level 3, Aubigny Place
Mater Research Institute
Raymond Terrace,
South Brisbane QLD 4101
The University of Queensland Faculty of Medicine

General Enquiries
stillbirthcre@mater.uq.edu.au
+61 07 3163 2567
Copyright © Stillbirth CRE
Terms of Use
|
Privacy Policy
* indicates required